“...The very first time you finish Life With Parkinson’s 50 Facts & More you will notice that every emotion you possess has been touched, and at the same time you have gained a great deal of knowledge about Parkinson’s disease.”
Disclaimer: This educational publication is intended to serve as an overview of topics related to Parkinson’s disease. It is written for people with Parkinson’s, caregivers, and others affected by the condition. The publisher, authors, and reviewer have taken care to ensure that the content is up-to-date, but as new information becomes available, changes in medical approaches become necessary. This material is for informational purposes only. It does not replace the advice or counsel of a doctor or health care professional. Readers should consult with and follow the advice of their doctor or health care provider. The publisher, authors, and reviewer disclaim responsibility for any liability, loss, injury, or damage incurred as a consequence, directly or indirectly, of the use and/or application of any content contained in this publication.
The Guide for People With Parkinson’s,
Their Caregivers, & Families
Life With Parkinson’s: 50 Facts & More
A Review by Prof. Frank C. Church
Teacher, Author, and Person Living With PD
Founder & Curator of JourneywithParkinsons.com
This recently published reference guide, known shorthand as The PD Companion, is a lifestyle manual for living
with Parkinson's disease (PD). It is filled with salient insights helpful for anyone with PD, their care partners, and
families, and it comes packed with love. The book is not overly long, yet it overflows with important
information. The clinical details within have been reviewed by the well-respected Parkinson’s researcher Dr.
Alberto Espay of the Gardner Center for Parkinson’s Disease and Movement Disorders at the University of
Cincinnati.
This is not a guide designed to simply list the enumerable written facts about PD. Rather, it is filled with
layperson-friendly creative drawings, tables, and schematics designed to improve readers’ health literacy by
contextually illustrating the many key-points about the disorder, highlighting how to take care of oneself
medically. It provides essential focus on motor and non-motor symptoms and much more. The manner of
information presentation creates reading as easy as it can get when describing a disorder like PD, a disease
where no 2 people’s experience of it are exactly alike. With the depth of illustrations and description provided
throughout comes clarity and respective priorities for the person living with PD, their care partner(s) and family
members to absorb and refer back to as the need arises.
The PD Companion does not end there. It contains key sections devoted to living well with PD for the person
with the disorder, care partner(s), family, friends, and colleagues. Much of it is practical advice portrayed
logically, including crucial recommendations. Most importantly, all the innumerable “pearls” to be discovered
within are presented with care, compassion, and concern. Several unique “bonus” sections in PD Companion
serve to round out its long-term utility, such as an appended quick reference guide to the many PD-related
abbreviations and acronyms, an ever-growing list which can be challenging to keep track of. Equally important is
the exhaustive collection of PD terms and vocabulary with corresponding easy-to-grasp definitions. This glossary
of “all things Parkinson’s”, also includes respective page numbers so readers can actually locate the word or
phrase in context within the book. Readers will want to keep this reference handy as a consultative resource,
and perhaps even provide a “share copy” for interested relations in their life.
There are many excellent books that describe Parkinson’s and discuss how to treat it, and those books do offer
advice about living and managing one's life with the disease. Unfortunately, those of us with PD will have the
disorder for the rest of our lives; therefore, being filled with hope, positivity, persistence, and education seems
to be the best way to make it through this journey. Life with Parkinson's 50 Facts & More is filled with wisdom
relevant to your PD life, wherever you are on that journey. This publication is vital reading to help those of us
with PD, our caregivers, and our families better understand and manage Parkinson’s unique life challenges and
related complexities.
The very first time you finish Life With Parkinson’s 50 Facts & More you will notice that every emotion you
possess has been touched, and at the same time you have gained a great deal of knowledge about
Parkinson’s disease.
February 10th., 2022
Frank C. Church, PhD.
Chapel Hill, North Carolina